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No family should navigate APDS alone. Helping individuals and caregivers feel informed, supported, and empowered.
Through education, collaboration, and support, the APDS Coalition works to raise awareness and build a stronger global community affected by APDS.
The 1st Annual
APDS Awareness Day & Walk 2026
The coalition's first-ever APDS Awareness Day in Phoenix, Arizona!
The 1st Annual APDS Awareness Walk took place on Saturday, October 3, 2026, in Phoenix, Arizona.
Organized by the APDS Rare Disease Coalition, this inaugural family-friendly 5K event was created to bring together patients, families, and healthcare advocates to raise awareness for Activated PI3K Delta Syndrome (APDS).
What is APDS?
Activated PI3K Delta Syndrome (APDS) is a rare primary immunodeficiency that affects immune function. Individuals with APDS may experience frequent infections, swollen lymph nodes, chronic inflammation, and autoimmune symptoms. Because APDS can resemble more common conditions, many families face long journeys to diagnosis and care.
Evaluation may include immune system testing and genetic testing, while treatment options can include immunoglobulin therapy and targeted medicines.
Understanding brings clarity, and clarity brings care.
Our Mission
At the APDS Rare Disease Coalition, we are dedicated to raising awareness, providing support, and building meaningful connections for individuals and families affected by Activated PI3K Delta Syndrome (APDS). Through education, advocacy, research support, and community engagement, we strive to bring clarity, resources, and hope to families worldwide navigating life with APDS.
Our Approach
Awareness
Spreading Knowledge
Research
Advancing Innovation
Support
Supporting Patients & Families
Community
Building Meaningful Connections
Voices from Our Community
"The support from APDS Rare Disease Coalition has been invaluable to my family."
- Emily
"Thanks to their resources, I feel more informed and empowered about my condition."
- Michael
"APDS Coalition's work is essential for raising awareness about rare diseases."
-Sarah
Connect with Us
Stay connected to the APDS community. Get updates on events, research, advocacy efforts, and ways to support families affected by APDS.
