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No family should navigate APDS alone. Helping individuals and caregivers feel informed, supported, and empowered.
Through education, collaboration, and support, the APDS Coalition works to raise awareness and build a stronger global community affected by APDS.
The 1st Annual
APDS Awareness Day & Walk 2026
Together, We Can Bring Hope to APDS Families
Join us in raising awareness for Activated PI3K Delta Syndrome (APDS), a rare primary immunodeficiency affecting individuals and families around the world.
1st Annual APDS Awareness Walk: October 3, 2026
Help us educate, advocate, support families, and advance research while building a stronger future for those living with APDS.
What is APDS?
Activated PI3K Delta Syndrome (APDS) is a rare primary immunodeficiency that affects how the immune system functions. Individuals with APDS may experience frequent infections, swollen lymph nodes, chronic inflammation, and autoimmune symptoms. Because APDS can resemble more common conditions, many families face long journeys to diagnosis and care.
Evaluation may include immune system testing and genetic testing, while treatment options can include immunoglobulin therapy and targeted medicines.
Understanding brings clarity, and clarity brings care.
Our Mission
At the APDS Rare Disease Coalition, we are dedicated to raising awareness, providing support, and building meaningful connections for individuals and families affected by Activated PI3K Delta Syndrome (APDS). Through education, advocacy, research support, and community engagement, we strive to bring clarity, resources, and hope to families worldwide navigating life with APDS.
Together, we are turning uncertainty into understanding and isolation into community for families affected by APDS
Voices from Our Community
"The support from APDS Rare Disease Coalition has been invaluable to my family."
Emily
"Thanks to their resources, I feel more informed and empowered about my condition."
Michael
"APDS Coalition's work is essential for raising awareness about rare diseases."
Sarah
Connect with Us
Stay connected to the APDS community. Get updates on events, research, advocacy efforts, and ways to support families affected by APDS.
