Vision.
We envision a future where no one with APDS feels alone—where families everywhere have access to accurate information, strong support systems, and equitable healthcare. Through national and international partnerships, we will be a united voice advancing research, early diagnosis, and rare disease awareness worldwide.
Mission.
The APDS Rare Disease Coalition exists to bring hope, education, and advocacy to individuals and families affected by Activated PI3K Delta Syndrome. Founded in Monticello, Utah, our mission extends across the United States and globally. We work to raise awareness, build supportive communities, and collaborate with researchers, healthcare providers, and policymakers to improve care and quality of life.
Faces of APDS…
