Support Groups
Virtual
Understanding. Support. Encouragement.
Join the APDS Rare Disease Coalition Community!
At the APDS Rare Disease Coalition, we understand that living with a rare condition like Activated PI3K Delta Syndrome (APDS) can be overwhelming. That’s why our coalition provides personalized support, education, and guidance to patients, caregivers, and families seeking answers or community connection.
Our support services are designed to help you navigate your rare disease journey with compassion, clarity, and confidence.
Our support groups are open to all patients and caregivers of those diagnosed with APDS. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
Our Promise
Whether you’re newly diagnosed or have been navigating APDS for years, our coalition is here to stand beside you — helping you find the right information, the right support, and the right community.
